Wednesday, February 4, 2009

Worst Night Ever: Toddler's Febrile Seizure

I'm writing about the worst night I've ever experienced for four reasons...writing has always been therapeutic for me, it will be easier to point to this post to tell the story than re-tell it once again, I want to let my readers know why the blogs will likely not be updated this week, and most importantly to help anyone with a similar experience who happens upon this site.

Yesterday after work my 2.5 year old daughter wanted to snuggle which was uncharacteristic for my normally robust toddler. I noticed a fever and treated it with Tylenol. After a bath and a pre-bed time 2nd dose with her fever now at 102.7, we put her to bed. When two hours later she came into our room we brought her into our bed. At 2:00 a.m. she awoke with what I now understand were convulsions. As I screamed her name, she was unresponsive. My husband, now awake, brought her into the bathroom where she continued to stare trough us with labored breathing as he placed her on the floor on her side. As I yelled to ask if she was breathing, I noticed her lips were blue. While I was on the phone with 911, my husband continued to call out to her. Holding her in an upright position and running downstairs to wait for the ambulance, we could tell she was breathing but the next 5-10 minutes as we waited for paramedics were the longest of my life, not having any idea what was happening.

Before they arrived she regained consciousness and began to say "Daddy." Nearly 1.5 hours later at the hospital she was diagnosed with having a febrile seizure. No prior history, family history or any warning whatsoever. Turns out the episode was brought on by a spike in fever (due to a positive case of the flu) and though completely alarming was actually a harmless event without any lasting effects. Shockingly, approximately 3-5% of children between the ages of 6 months and 6 years will experience a similar episode with a slightly increased risk of it reoccurring in the future. The only recourse is aggressive treatment of fevers in the future which I can only assume will give me mini-heart attacks every time she has even a slightly elevated temperature.

While she and my husband have gone back to normal and all is apparently well once again, I can't get the episode out of my head which is why I will be on the DL for a few days as I spend every spare second making sure my daughter is OK. I don't wish a similar episode on any parent, but take comfort in knowing febrile seizures are more scary than dangerous.

Has this happened to anyone you know? Share you experience...
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Posted by CoolBabyKid at 6:41 PM
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54 comments:

  1. I would like to pass along our thoughts and prayers. We have never had this experience, but thank you for sharing your information.
    ---Leane
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  2. I had the same experience with my daughter when she was 18 months. It's horrible seeing their healthy color just drain out of them as they turn dusky blue. It's a terrifying experience and I very much sympathize with you. I can give you a word of encouragement. We never had another occurance of a febrile seizure.
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  3. Thanks for sharing...it is reassuring. :)
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  4. We have 5 kids and had never heard of such until our youngest (7 months) had a febrile seizure. She was sleeping and let out a cry, started to shake with her eyes rolling back into her head. Not knowing what was going on, we picked her up...not supposed to. She just had another the other day. Thank God we knew what to do. Keep them on their side making sure their airway is clear. If the seizure lasts more than 10 min. or they turn blue call 911. That is if you know it is a febrile seizure, if not, call 911. Just another note of caution...while giving her a bath, she started to twitch (bath water that causes a quick rise in body temperature can bring on a seizure for a child that is prone to have them). As a mother of 5 it is the scariest thing my husband and I have ever experienced. Knowing what to do is key!!
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  5. My baby Vincent had his first febrile seizure @ 10 mnths old. At the time his fever spiked to 105.2 out of nowhere. He then went 14 months without another seizure and I tried to put it out of my mind. On 1/24/2009, he again had a 105.4 fever out of nowhere and then had a seizure. He does not turn blue of have promblems breathing, but is non-responsive and twitching and eyes rolled back. We then were told to take him to a ped. neour. in case it was something more. We where scheduled to go to the local hosptial to do a MRI with contrast. He was given a local anest. and seemed to do fine. We then were to go be admitted for the night for a nightEEG of the brain. Somewhere in the course of the late afternoon, he developed 103 fever. He went throught the night and in the morning had a series of 3 seizures--one that lasted 45 sec. and the other two were 5-7 seconds. He was then transferred to a childrens hospital and released after two days. The MRI showed sinisitus and he was given a 30 day regiment of anti-biotics. He is also on keppra (anti-seizure med) 2x per day and goes to his ped. neuro once a month. He is developmentally wonderful and has no other problems. I have installed a video camera in his room and watch him every night from my room. The fear and anxiety I live with on a daily basis is more than I can bear at times. I have another child 4 yrs old) and I try to keep it together as best I can. The visions play in my mind over and over again and I am in a constant state of fear. The ped. neor. stated that he will outgrow this at age 5-6 when the brain becomes mature enough to handle the sudden surge. They explained to me that it is not necessarily the number on the thermother, but the sudden surge that causes the seizure. My baby is only 2 yrs old, so I have a few more years before I can try to relax and be "normal" again, although I don't think I will. I wish all the luck in the world to all the mothers who have children with this problem. It is horrible to see and most of all, not being able to help your child is the worst feeling in the world. God Bless us all. Ellie
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  6. I recently came accross your blog and have been reading along. I thought I would leave my first comment. I dont know what to say except that I have enjoyed reading. Nice blog. I will keep visiting this blog very often.


    Ruth

    http://ramupgrade.info
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  7. I recently came accross your blog and have been reading along. I thought I would leave my first comment. I dont know what to say except that I have enjoyed reading. Nice blog. I will keep visiting this blog very often.


    Betty

    http://laptopprocessor.info
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  8. Thanks so much for taking the time to post your story! My daughter will be three in July, and had her first this past week while visiting with my mother for the first time overnight since she was born. My 15 yr old daughter was putting her in the car-seat for her grandmother on their way out to breakfast. Our 11 yr old daughter was there as well. They took her back inside and called 911. We ended upfinding out she also had pneumonia (which I had asked for x-rays 2x in the lst month while I thought she was congested in ER and they said she just had a cold). My 15, and 11 yr old said they never would yell at their babysister ever again after witnessing the episode. My husband and I were an hour and a half away. Now that my daughter seems to be back to her normal routine, and my husband, I am still just scared out of my mind to let her go back to her daycare (15 hours a week) and play any sports outside with her sisters. I am afraid of her catching another illness from a child at daycare which could cause another fever or becoming overheated. I have a freshman in college too! I should be immune to this you would think by now, but I am terrified.
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  9. My little girl had her first seizure 3 months ago. I had no idea she had a fever. She was sitting at the end of my bed on the floor playing so I didn't have direct eye contact with her when it started. I though she was choking at first due to her blue lips. Called 911 went to chidren's, the next ime it happened after going to the gym. I had just buckled her in to her car seat and sat down in my seat and looked in the mirror, she was having another one. Pulled her our out and called 911 again. Now, she has a fever flu bug that my son had and wasn't doing well at all so I brought her to the doctor. While sitting waiting she rolled her eyes back and started convulsing in my arms..I yelled for the doctor, I'm thankful I was there already. This last one was pretty hard. Lasted for 3 minutes. She still has the fever flu bug and we are treating her aggressively with tylenol & ibuprophin while treating a possible sinus infection with antibiotics. So, that's 3 seizures in 3 months. She's amost 3 years old and never had one before. I'm just terrified to be more than 2 feet away from her. I can deal with almost anything the world can throw at me but this has shaken me to the bone. The fear of what if is overwhelming. I'm just hoping we will get more answers at the neurologist appointment.
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  10. -Hello-

    My son has had febrile seizures since he was 11 months old. The first episode was the most terrifying experience in my life; I felt completely helpless. He is 4 years old now and just had another one this month. Outside of the febrile seizures he has developed drop attacks which seem to occur every 4 to 6 months. He's had numerous eegs and 2 MRIs. Has anyone experieced other types of seizures outside of febriles with your children? If so, are there solutions? I am so desperate to help my son. I am filled with anxiety and fear and don't know what else to do. Please help!

    Thank you!
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  11. yeah actually just experienced it this morning while at some close friends house. Scared me to death as I was the one that found him. Wow ever so scary
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  12. My 19 month old daughter ahd a febrile seizure last week while we were at the lake. It was one of the scariest moments of my life. I have 3 other children, but none of them ever suffered from one. She had had a low grade temp in the a.m., but appeared fine, so I gave her some Motrin and we went to the lake to swim. She was her usual self and had just visited the icecream truck and eaten a popsicle 45 minutes prior to the sz. I was holding her in my chair when I looked down and saw her eyes open, but in a fixed stare, limp and pale. I quickly splashed water on her,, to no avail. I was calling her name, but she was non-responsive. I thought she was dying. A nurse at the beach assisted me, because although I am also a nurse, I was panicked that I was going to lose her. She was non-responsive, convulsing and foaming at the mouth for 5 minutes. She was transported to the hospital and tests revealed that she was suffering from a virus. After receiving some Tylenol at the hospital, she was sitting on my lap eating popsicles and a turkey dinner that they had brought us. I was so relieved that she was o.k. So were her brothers and sister, who witnessed the seizure at the beach this day. I feel like I'm on high alert all the time right now, always checking to make sure that she is o.k. Just starting to sleep better, as I would lie awake at night reliving this nightmare. I now know that I will take fevers more seriously.In the meantime, I was told by her drs to automatically treat her with Tylenol and Motrin, at the first signs of illness. We're just so happy that our baby, Caroline, is home with us, safe and sound:)
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  13. My son has had 6 febrile seizures, he is 3 years old now and the last one was almost a year ago. My son's first one was the worst I did'nt even know what a febrile seizure was, let alone that he was having one. He stopped breathing and I had to give him CPR, I will never forget the look on his face and my feelings of helplessness. They never seem to get easier to watch, I think about it every sec of every day. I pray everyday that he wont have one that day, he is going to start school soon and that is my biggest fear that he will have one at school, and I wont be there to take care of him. I am going to print out info to give his teacher so she can be aware of his condition. This is more common that I ever thought. My husband is a Parametic and he deals with febrile seizures all the time, too bad it wasnt until my son had his. We now have an endless supply of tylanol and motrin on hand and a rectal thermometer to get his accurate temp. We have spent countless nights in the ER and gone to do more tests than I can even remember, he is a healthy growing boy with no signs of anything being abnormal (thank god). My thoughts and prayers go out to everyone that has to deal with this...Thanks for letting me share my story with everyone!!
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  14. My son had a febrile siezure almost two years ago. Never been so scared in my life. He has not had one since though, but I do monitor his fevers closely. My Dr said that there can be a genetic weakness to seizures. Since learned that my Dad had seizures for about a year and a half when he was @5 years old. After that he never had another one. Hope this gives you some hope that the seizures won't be forever.
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  15. WOW!

    I have a one year old daughter. I was freaked out because the other day in her car seat she displayed what I thought was a seizure. But now after reading these posts, I realized it would have been more traumatic than what is was. I will pray for everyone that is experiencing these problems. I was so upset and worried when I just thought my daughter was having a seizure, I can only imagine how scary it is when it actually happens. I pray that I never have to experience it. Good luck to everyone!
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  16. My son Noah just had a febrile seizure on Sunday.

    I can attest that it was the worst 2-3 minutes of my life. I cannot describe the feeling of holding your child and feeling like they are dying right there in your arms...

    My son also has a heart condition, which ironically, he is due for surgery in less than a week.

    His episode began about 10 minutes after I had given him some Tylenol which he happily swallowed, along with some water.

    He opened his eyes and had an extremely uncomfortable look on his face. I went to lift him up just as he vomited, and then the convulsions started.

    I thought he had aspirated the vomit and was choking, so I did not let go. I held him upside down and began to thump his back with my palm.

    After a minute he went totally limp in my arms and was, by all appearances, not breathing.

    That is when I started screaming at him to breathe. I laid him in the hallway, checked for a pulse, which he had, but still no breathing.

    I held his nose and blew into his mouth twice...nothing. I ran to get the phone to call 911 and raced back to him.

    It was just as I was dialing that I saw his chest start to move again.

    It was like I had survived a plane crash...

    I called my wife instead, who was almost home after a night with friends. I told her to get here ASAP because we needed to go to the emergency room. She was 4 minutes away.

    It then dawned on me that he was still limp, and his breathing was very shallow. I cradled him for a moment and then he opened his eyes, but there was no consciousness there at all.

    I was ready to call 911 again. By this time my daughter who is 8 and Noah's twin brother, Luke were both awake. I decided that it would be faster if I just drove him straight to the hospital myself when my wife got home. We are only 10 minutes away, and it takes paramedics that long just to get to me...

    My wife took a look at him and immediately became upset at how lifeless he was. If she had only seen him 5 minutes earlier she would have thought he looked great...

    I dialed 911.

    He gradually recovered some semblance of conscioussness, but when they measured his blood O2 gases 15 minutes later in the ambulance they were only at 90%. Normal is 96%+. He had gone awhile without getting much oxygen for it to be that low 20 minutes after a seizure.

    We went to the ER and they gave him an IV because he vomited 2 more times in the ambulance.

    He continued to have mini-tremors that frightened him, and made him cry. They died down as his fever subsided. His blood work was good, but he had a raging ear infection.

    We brought him home at 4AM that morning.

    Later that morning, after a deep rest, I spied him in his crib, playing happily with his toys.

    It is amazing what Tylenol and Ibuprofen can do.

    It all felt like a dream to think that just 7 hours ago I held him limp in my arms certain that he was dying right there in the hallway.

    I will never forget the terror I felt. I never knew I was capable of the emotion I felt in those seconds--willing to give anything and everything I had or could ever have if he would just start breathing again.

    The positive side of all of this is the perspective it can give you. The everyday nuisances just do not seem to register on my emotional radar this week.

    Nothing, no matter how bad, equates with the feeling you feel in that moment.

    It is notably anti-climactic that these seizures are generally harmless.

    I cannot imagine a more terrifying harmless thing in the world....
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  17. My 2 1/5 year old son just had his second seizure 3 days ago. I looked over to see what he was doing because he was so quite and he was on his side with a puddle of drool pooling from his blue face. I screamed for my husband to call 911. I tried to give mouth to mouth which seemed impossible because his mouth was clenched shut. After about a minute he came around, we stripeed him down and out him on the couch on his side while the paramedics arrived. I did not see the seizure happen but the first time it did my dad was holding him at 10 months and his eyes went up into his head and he kind of passed out. The first time we were told it was a febrile seizure. This time however because there was no fever afterwards they are not sure. We have to wait one month for an EEG, then another month after that for results. I have been an absolute wreck ever since. I cry every time I think about it and also feel absolutely crushed and hopeless. The day after it happened he was back to his hyper little self, except that he did have a cold / runny nose, and ran out of energy by 11am instead of 2pm. I reluctantly took him to the gym today scared, and sure enuf 10 minutes later they came to get me. I was about to die as they said his eyes were closing, turns out he was exhausted. It was 11am and when he gets tired he is like a drunk man. I just don't know how to function, and what I am supposed to d now. I am scared stiff. It seems like one blow after another.
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  18. David PetersonOct 5, 2009 07:26 PM
    Our 18 month old son had his first febrile seizure 10 months ago. Lasted about ten minutes. He had another seizure three weeks ago, and that one lasted an hour. Took enough medication to bring down a horse to get him to stop seizing, and he was pretty much knocked out for three days. He's on Keppra now, and seems to be responding fine to it. We'll watch his temperature like a hawk, do as much research as is humanly possible, and pray for no more seizures.
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  19. My 17 month old daughter had a febrile seizure two days ago. I thought she was dead. It was as if I was plunged into my worst nightmare. She did not convulse. My husband and I were at the store and she went limp in the shopping cart. Her face was pale, her lips were blue and she was not breathing. At first I thought she was choking so I turned her upside down and hit her back. Since nothing came out I put her on the ground and pushed on her diaphragm. When nothing came out I thought "this is it she is dying and there is nothing I can do about it" I began screaming. While I was screaming a man near me said "Mom, her color is coming back." I tried to calm down and began speaking to her. She was not alert for 15 min. She had a fever of 103. This was the worst experience of my life I actually believed I had lost my daughter. I pray to God this never happens again. She had a fever of 103 again last night. I quickly stripped her down, gave her motrin and sponged her off. She did not have another seizure.

    Has anyone had a child who had a febrile seizure with no convulsing? Only limpness and blue lips?
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  20. My son started having febrile seizures since 01/09 he was 5 months old. He was getting them every month until April, when he started getting them every two weeks. Some of his febrile seizures would last 10 min or so. He started taking Keppra in June. In July he had a seizure without fever, the doctor told me not to worry. In August he had another seizure without a fever and that's when they diagnosed him with epelipsy. They have done an MRI & 2 eeg's and those test have come out normal. He is still taking Keppra, but to me it seems not to help him at all. He still keeps having these seizures every two weeks. He had one this morning that lasted 10 min. Even though he's been having these seizures since the begining of the yearm, I still get scared and sad when I see him seizing. His neuro keeps increasing his dose & I don't see any change. I pray to GOD to heal my son.
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  21. Just happened to me on Sunday. My daughter is 4. Our 8 year old son had a high fever last week and we tried to keep the two of them apart, fearing H1N1. Sunday morning, she came in and said her head hurt and i noticed she had a fever. After a dose of advil, she seemed to get better. 3 hours later she began to heat up again and complain of a headache. I gave her a dose of tylenol (piggy backing, as my doc calls it) Twenty mintues later i noticed she was breathing more rapid. Then i asked her a question and she wouldn't respond. Then went into a full on "tonic" seizure - stiffness, jerky arms, grabbing, eyes fixed and dialeted. It took 7 minutes for the ambulance to get there. At the ER, it took about 2 hours for her to come out of her "glazed look" A CT and spinal were all negative, and it was determined to be febrile due to H1N1. Got her home and treated her every three hours alternating advil and tylenol. Next morning, it was like nothing happened.

    What i learned - when she starts to warm up, advil immediately (make sure it's right dose, we had too little) Take off the pjs and just keep underwear, run a luke warm/cool bath and just keep the temp down. Alternate Advil, then tylenol after three hours, then advil after three and so on.

    I am terrified - what if this had happened and i was upstairs getting laundry, or in the middle of the night, or or or..... worst day ever!
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  22. My 14 month old daughter had a febrile seizure last night just minutes after finishing her dinnaer and playing in the computer room on the floor. My husband looked over at her and she was just sitting there staring into space blank look on her face and not responding to him. He brought her out to the living room to me thinkingshe was choking on something. I freaked out because I didnt realize it was a seizure because she was NOT convulsing at all. This was her first ever fever and she was not warm or acting sick at all before the seizure. As she was seizing her temp rose quick.By the time the ambulance arrived she had a 103.2 fever. Her biological father has epilepsy and none of my other 3 children have ever had a fever seizure or any kind of seizures at all. I am still feeling shook up over it, but she is playing here in the room with me as if nothing ever happened. I slept on the living room floor with her last night so I could keep an eye on her temp and give her motrin thru out the night. VERY SCARY experience.
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  23. I just want to say thank you to all over you for sharing your story!!! My daughter is turning 3 at the end of this month and she just had her 3rd seizure Wednesday! We were told that all of them were due to fever, but this last one(even thougt the ER doc said it was due to fever) her doctor said she didn't think it was due to temp. She took some blood for testing(which has come back good) and we are headed to a specialist Thursday. I'm a complete mess. As if the seeing your child in that state isn't bad enough, now I'm so consumed with this awful fear of what if it's something else!!

    Reading all the stories, helps me to feel like I'm not going to lose it. The fear is just out of this world!!!
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  24. Share with us on http://www.coolbabykid.com since Smart baby Kid is unfortunately no longer active! And thanks for sharing!
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  25. my daughter first got the seizures when she was 3 1/2 months old it started 3weeks after she got her DPT vaccine. it just started with the twitching on her arm. after her second DPT vaccine she went into a full blown seizure. it was the first time in my life that i ever experienced anything like this,,and it was horrific. she was then put on anti convulsants but after that everytime her fever would go above 100f she would start to convulse. i thought i almost lost her when she got what was called a status epilepticus .. it lasted for over an hour , she had turned blue and had almost stopped breathing by the time we got to the hospital.. doctors had to try everything they could to resuscitate her. she was then put into the intensive care unit for observation. Her EEG's were normal .. i dont think ive ever experienced anything as frightening to see a poor little girl suffer this way and being so helpless. now im paranoid about everything... i wake up several times in my sleep just to check on her,, i cant leave her alone even for a second, i cant go back to work, i cant travel and its even affecting my marriage.. all i think about is her seizures.. if they are febrile seizures why do they go on for so long..my daughters have never been shorter than 20mins and i have to use diazepam to stop them everytime,,yet they all come with high fevers. can someone out there please help me. i dont know whats going on.
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  26. My son had a febrile seizure for the first time this week. It was easily the most terrifying few minutes of my entire life. He'd been sick with a cold/cough for a day or two and had been running a fever for about 12 hours. He's had a couple of high fevers before, so I gave him Motrin and didn't think too much about it. However, he was very listless and just wanted to be held and sleep in our arms, which is unlike him.

    We took him to the pediatrician and found out he had a bad double ear infection, which is unusual since he got tubes put in last summer. His temp was still 102 at the dr. office. When we got home, he fell asleep again on my chest, so I figured I'd just let him rest.

    About an hour later, I felt him start to convulse. I laid him down on his back on the couch and screamed for my husband, who was working in the basement at the time. We both called 911, I ended up hanging up while they talked my hubby through what to do. The seizure lasted 3 to 4 minutes. We weren't sure my son was breathing, his face went gray toward the end and his lips were turning blue. I honestly thought he was going to die. Then I thought if he came back, he would for sure have brain damage.

    Hubby got our son stripped down and I rolled him onto his side. The seizure finally stopped and he took a deep breath. His color came back almost immediately, but he was out of it. The EMTs arrived shortly after that (within 5 minutes) and gave him a little oxygen, then packed us up and took us to the hospital by ambulance. He slept the whole way there.

    At the ER, they gave him Motrin, Tylenol and started his antibiotic. He didn't do much besides sleep and fuss. Hubby and I were an absolute mess. It didn't help at all that the dr. and nurses kept trying to tell us that febrile seizures aren't terribly dangerous or serious - if anyone has witnessed your child having one, you can attest, it is the scariest thing you've ever seen.

    It's been four days now. Our son's fever started to come back a couple times in the days that followed (never got higher than 101 F), but we were right on top of it with the Tylenol and Motrin. He is still fussy and coughing and has a terrible runny nose. I wonder how long it will take him to get well again, seems like the antibiotics are taking forever to really kick in. We will follow up with his pediatrician and ENT next week.

    I feel for any parent who has gone through it. I will never get that image out of my head.
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  27. Thank you, my son had a febrile seizure January 8th due to a sudden spike in temperature. My husband was at work and I called 911. I haven't been able to get the images of his seizure out of my head. He's bounced back just fine, but it's going to take me a bit longer.
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  28. I have been reading the stories in this blog. My daughter had a febrile seizure a month ago. she is 17 months old. I have a question.

    My daughter is healthy and normal. But off late, she has not been sleeping well at night. She keeps tossing and turning and moves around a lot. She is tired in the mornings. she stopped taking morning naps 4 months and now she is going back to it. I am wondering if there is some connection between the seizure and her sleep trouble. I have talked to the pediatrician and ENT and they think it might be a normal thing for some children. But I dont believe it is. I think she has some discomfort. I am not sure if she has obstructed breathing. Anyone has the two issues happening together?

    Here is some more about the seizure...
    Just like others, I didnt know it was a seizure. She was on antibiotics for a ear infection and had mild fever (101) for a couple of nights. That night she didnt seem quite alright. I gave her tylenol and put her to sleep in the living room so I could keep an eye on her while I was working in the kitchen. I am glad to this day that I acted on my instincts and not put her in her crib upstairs. A couple of hours later, I heard her moan lightly and I went to check on her. She was blue, body was stiff, eyes were open but eyeballs where stuck in upwards direction and she didnt respond at all. She shook her arms and legs for a few seconds. I screamed for my husband who called 911. In the meantime, I was still trying to wake her up. When I held her upright, she coughed and vomitted. After that 911 person on the phone told us to lay her flat on the floor (they thought she was choking) and tilt her head to open up her airways. Until that point, she was not responding at all. thjen we started seeing some shallow breathing. 911 responders came in and gave her some oxygen and told us it was a febrile seizure. she was alright after that. But we were not. The next 3 nights we kept round the clock watch on her and kept her on tylenol. I was completely freaked out when this happened and I thought I had lost her during those 7-8 mins (the longest ever). The next day we went to the ped and checked to make sure she didnt have meningitis (thankfully). We have been to a pediatric neurologist. Got her EEG done and consulted with him. Everything was normal. I took her out of daycare as she kept getting recurrent ear infections and I closely watch her when she sleeps.

    Here's my summary of do's and dont's.

    1. If your child is under 2, and its the first seizure, please take them to the ER. We did not, as the 911 responders told us it was not necessary and gave us a choice of watching her all night at home. That was a mistake. Both the ped and neurologist said that for the first one, we should.

    2. The neurologist told us children who have had a febrile seizure less than 2 yrs, can have febrile seizures until 6 or 7 years when they outgrown them. the average no of seizures is 12.

    2. The febrile seizures are induced by fever. The fever can be mild or high. In my daughter's case, it was mild. The key is to the keep the fever down. So keep them on tylenol every 4 hours at the first sign of illness, even if they dont have a fever yet. Also go to the doctor and find out if there is some other illness.

    3. The neurologist gave us an anti-seizure medicine "diastat" to use if the seizure lasts more than 5 mins. Next time if it happens, we will call 911, give her diastat if the episode lasts longer than 5 mins and call the neurologist per his advice.

    4. Trust your instincts about your child. If I had put her to sleep in her crib that night, I am not sure what would have happened!

    5. Keep them lightly clothed when they have fever, even in winter. We put her to sleep in her onsie and she did fine.
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  29. This happened to my 18 mth old daughter and I agree with all,it was the scariest thing I have ever witnessed and never want to go through it again.She had been unwell with flu like symptoms and her temperature was very high. At times while she was sleeping she would suddenly jerk,wake up and then start to cry. This happened several times until suddenly the major one hit. She awoke,crying so loud,i turned the light on and her face was contorted,her eyes were rolling and she was mumbling.it was as though she was possessed,it just was not my daughter at all. Thankfully she is getting back to herself and I have calmed down too and i never want to go through that again.I really thought something terrible was happening to my daughter before my eyes and I couldnt do anything for her. Thank god I still have her! xxx
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  30. Yesterday morning I took my 15month old son in to get his 15th month vacinations. Around lunch time he started getting a fever. I checked it and he was at 104. I called the doctors and he told me to give him so Motrin and if the temperature doesn't come down within the hour to take him back in. About 10mins after giving him motrin he started shaking, like his body would go stiff but than he came out of it just fine. This happened 3 times before we got to the doctors. The doctor took his temp and it was still 104. He told me to take him home and give him Motrin every 4 hours switching back and forth with tylenol. I asked him about the convulsing and he said it was normal. 15 minutes after I got home he started convulsing again, this time his eyes rolled to the back of his head and he was unresponsive, than his lips turned blue. Thank god my dad and sister were there because I panicked. They called 911 and they were here within 2 minutes. We were taken to the hospital and found out he had a ferbile seizure due to his rapid increase in temperature. We are home this morning and he is back to himself.
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  31. Hello everyone,

    My daughter had her first febrile seizure when she was 18 months old. It was the scariest thing ever and everytime I think about it I get sick. Well she is 3 now and had another one last week. It wasn't as bad as the first one but still very very scary. Both times I called 911 because there is now way I could just sit there until her seizures stop. Both times she has only seized once (Thank God). Her fever was 103.9 when she had it the first time and 104.1 last week. She had started with vomiting early in the day and then she got a slight fever 100.9. So we gave her tylenol and she was okay afterwards. I gave her tylenol again around 6:45 pm but she didn't feel warm. We went to bed around 10 and she wasn't warm. At 1 in the morning she lets out this cry/moan so scary can't even explain. We knew the second time around that she was having another seizure I didn't know if her fever was high but as soon as whe got to the ER it was at 104.1. The following day we followed up with her doctor and told us that there was nothing we needed to worry about. She did tell me that if it happens again we have to go see a neurologist. So I'm crossing my fingers that this doesn't ever happen again. Dr. told us that these seizures usually stop around 5 years old.
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  32. My son just turned 1yr two weeks ago. And tonight is one our most terrifying night of all. He has slight fever in the morning and through out the day. We thought it was due to teething. At around 7pm he has diarrhea; and after a last bottle of milk around 9pm, he goes to bed with a slight fever. Around 1am, he started to cry so we took him to our room, gave him some water and checked his temperature. It was 103-104.1 and so we gave him a tylenol. Stripped him down to his onesies and turn off the lights. A minute later he let out a cry, and his body started to twitch. While my wife was holding him and tries to call him, we noticed his eyes started to roll up staring towards his forehead with heavy breathing. He was not responsive at all. His left hand formed a fist and twitching at the same time. While I call 911, he starts foaming a little in the mouth and slowing turning blue on the lips. While waiting for the Paramedic, even though it's only a few minutes, it felt like years. I was outside the house checking for the ambulance bright lights to show. Of course the Fire Engine came first, after explaining what happen and they were doing all their test, strip him down to his diaper, and cool towel to cool him off, one of the guy told us it was Febrile Seizure. My wife followed them to Good Samaritan Emergency. While I have 2 other older boys sleeping in the living room didn't even wake up with all the ruckus. And yes, I came upon this site while doing some research. My wife just called and said the baby is still not very responsive. Yeap, it's scary, but almost all sites I went say it's more scary to parents than dangerous. Evan get well soon.. Dad.
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  33. My 15 month old daughter had her first febrile seizure a week ago. It was very frightening. We were out of town visiting my family. My daughter had a runny nose, but I had checked her temperature earlier that day and it had been normal. Her seizure started that evening. Unfortunately, she was in her high chair eating a snack when it began, so all of us assumed she was choking. Her eyes just rolled back in her head and she slumped over. Her body twitched a couple times but basically she was just limp and unresponsive. Her skin color went gray and her lips turned blue. We just panicked. I called 911 immediately as my husband started trying to do back slaps, still thinking she was choking. My mother ran across the street to get a neighbor who is a part time paramedic. She asked him if he could do the Heimlich on an infant. He ran over immediately and he was the first one to tell us she was getting air. He recognized that it was a seizure and put her on her side. The ambulance arrived shortly. Her temperature was only 100.5 but they said it had probably spiked very quickly. The seizure lasted about 4 minutes but it felt like an eternity. It was such a helpless feeling. It was just so scary. We all just thought she was choking to death. It took almost two hours for her to come back around. All the tests in the hospital pointed to something viral. She seemed back to normal by the next day. My worst fear right now is that she might seize in her sleep and I wouldn't wake up. What if her airway becomes blocked because she is sleeping on her back? I wish they made a monitor that could tell us if they stop breathing through the night. I know they make something like that for premature babies, but I want one for my toddler. I don't know when this anxiety will ever let go of us. My prayers go out to all the other families who have experienced this.
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  34. My son is 3 yrs old and he had 2 seizures March& April of 09. Scared the living daylights out of me. For the next month leading up to Jan he was seizure free and all tests came back normal. MRI, EEG, everything. Then all of a sudden in Jan through he just started seizing almost everyweek. Now as the days go by some get longer/shorter and some he fights where he tries to sit and stand during and he is up to most 5 a day. We started Keppra after his first 2 seizures and when they started to reoccur more frequently his Neurologist has added Topomax and Tranxene and now Deokote toatlling 4 medicines. We are in and out of CHOP everyweek. We recently have just been driving to CHOP ER when he has really bad days. Since our local hospital just phones over to CHOP for a plan of action. Our whole family sleeps on the living room floor on a futon since our son and my daughter doesnt want to sleep alone on the other side of the house. I sleep right next to my son and lately every morning I wake up to a frighting screech that my son lets out as he starts to seize. On my birthday that just passed a couple days ago was his worst one yet around 6:3o I awoke to my son seizing for 12 plus minutes and had to call 911, thats a birthday I'll never forget. We live our lives in constant fear and follow our son around rt behind all day everyday, we have to because he can have them at anytime. He has been in mid running and crashed rt into the ground, in the middle or eating , sleeping, standing, sitting, and playing. My daughter is five years old and runs out of the room. One day the gate that leads out of the living room was shut and she ran over to it shaking it screaming let me out of here. I am trying to lead our lives as normal as possible but how can I when meds are not working, son is still seizing and CHOP is our second home. I sit outside in the parking lot of his preschool everyday just in case something happens I'm there already. Just missed Easter with my whole family because my baby had a seizure first thing in the morning. I pray for him everyday and anyone who is expirencing what my family and I go through everyday.
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  35. My son, soon to be 2, was recently diagnosed w Complex Febrile Seizures. Complex because he has had more than one in a 24hr period. The first seizures occured in Jan, a result of bacterial pneumonia. Followed by seizures due to the roseola virus in Feb. In total he has had 7 febrile seizures. On March 16th he had an MRI w anestheia. He was fussy coming out of anesthesia, but vitals were good, so they sent us home. That night he had a febile seizure and the following day he had 4 seizure NOT related to fever. Has anyone else experieced seizures after an MRI? Results of the MRI were normal, along w 2 EEG's, and a spinal. Drs could not giveus a reason for the seizures and suggested we put him on an anti-seiz med...we opted not to. We have Diastat on hand in case it's needed. Our lives have been turned up side down. And my anxiety is through the roof. Thanks for posting comments, it helps to read what others have done and suggested.
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  36. I am in shock right now asthis happened to us an hour ago - my daughter is also 2 1/2. My wife and her were taken to hospital half an hour ago and I'm scouring the net now for answers as to what exactly happened. I hope she will also turn out to be okay.
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  37. My son is 2.5 and has had several febrile seizures and they are always horrifying to me and I don't sleep for days until the fever is gone. He usually gets them on the first day of an infection, either ear or sinus. The infection isn't always visible on the first day, sometimes it takes a day or so to present itself.

    This may be helpful for parents treating fevers...We were told that Advil works better than Tylenol, and for a seizure prone kid, alternating Advil and Tylenol every 3 hours is even better, and giving a seizure prone kid the Advil 1/2 hour before they are due for the next dose because that's how long it takes for it to kick in. We were also told that almost always, a fever with a seizure indicates an infection, not a virus.
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  38. My daughter had her first seizure when she was 3 like most of you I was very scared did not know what was going on. We called 911 because she started to turn blue. That is the scariest part of it all when you are watching that happen to your own child. We went to the hospital and they did blood work and urine test on her which all came back normal. We followed up with the pediatrician and he told me that she had a 35% chance of haveing a second, but that children will usually grow out of them by the time she is 5. Well she is now 5 1/2 and had her second one last week the same thing stopped breathing, shaking and unresponsive. I was cought off guard because of almost being 6. Well the follow up with the dr this time said that she now has a 65% chance of having a 3. That is when we will have to see a neuro. I almost wish that kids had an indicator light on them that would let you know when they have grown out of it. The problem that I have is that she is never sick before or after no colds ear infection nothing. Well I hope all the children on this blog are better. Thanks for having this site I am glad that I get to read other parents stories.
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  39. My son is now 3 1/2 and has had 4 febrile seizures. The last one occured a week ago. This one was different only because he started to vomit in the middle of having the seizure. I was home with my 13 yr old son, husband out of town for work. It was horrifying and I was in shock, worrying he'd choke on the puke. I am happy to say that did not happen. I had given him Motrin about 5 mins before the seizure. Since he vomitted that up, I tried a product called "Fever-All". They are acetaminophen suppositories. I'd never used one before so I was a little leary....those things are awesome. He didnt even know I did it and it took his fever down a lot faster than waiting for the oral meds to kick in. I know these are the scariest thing to watch...I feel for all of you who have posted here. Every time I hear of someone having a baby, I tell them to look it up online, so they can be prepared.
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  40. My son had a febrile seizure when he was just one year old. He had his one year check up on March 19, 2010 - the day after his first birthday. He got the recommended boosters that Friday morning and checked out fine. That Sunday morning, at 2am, i heard him coughing and attended to him. He had a 101 fever and I gave him Tylenol and a bottle. He stopped taking the bottle and let out a shriek and proceeded to have a seizure. I gave him to my husband and called 911. He became unresponsive and turned blue briefly. When the paramedics came they gave him oxygen. At the hospital he had a chest Xray and blood taken. All results were normal. The ER doctor diagnosed him with an ear infection and explained febrile seizures to us. The following day we took him to his pediatrician and she found him to be fine and suggested continuing the medicine for the ear infection. On Wednesday, he had a regular checkup for his asthma. He had not been having any issues and his doctor reassured us. On April 1st, he came down with another fever - 102. We treated him with Tylenol and Ibuprofen. He was happy, crawling, eating dinner with us and acting fine once the fever was down. He went to sleep, woke up at 9pm and had half a bottle. In the morning we found him face down in his crib - he had passed sometime in the morning. We did an autopsy and they found nothing wrong with him - his lungs were clear and he had no serious illnesses. We all did EKGs (my husband, my older son, and myself) to see if there were any abnormalities and we found none. In short, he was a healthy boy. The pediatrician who saw him the week before he died and knew him since birth suggested that he may have had a febrile seizure and ended up face down. In the altered postictal state, it is a possibility, even though under normal circumstances he was able to turn, stand, and crawl. I am sharing this story because I wish I knew more than I did and I wish doctors had not simply told me that the seizures were scary but harmless.
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  41. My daughter had her first febrile seizure a few weeks before her first birthday, then and 3 more 2 months later. We have history of both febrile seizures on my husband's side and also my side of the family. She had her 5th seizure a few weeks ago after, after that she was sick with the stomach flu. and just yesterday she had her 6th one, she was fine all day, I noticed before her bath that she was warm and took her temp, which was at 101.9, soon after her bath she seized, it lasted 8 minutes. She had an EEG a few months back, which was normal. It's scary, and you feel helpless. Doctors say she will grow out of them, all have been when she has a fever. I pray that it doesn't happen again, and that no parent has to experience this.
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  42. My son had what I believe to be his first febrile seizure last night. I am a nurse, but I have never actually seen this happen. However, I felt completely helpless when this whole event occurred. I worked late like normal on Thursday nights, and called my husband like normal after I was done with work. I work an hour from home, so as I began the drive, I informed him of what time I thought I would be there. Then, my husband (who has no medical training at all) starts screaming he was seizing. What a helpless feeling to be on the other end of the phone, an hour from home, and unable to do anything. My husband called 911, and the ambulance came to the house. I was terrified. My other toddler was so upset, wondering what was happening to brother, and my husband had to try to hold it all together on his own. He was great. I waited for the ambulance at the hospital. What a long night. Just like the blog above, there was no pre-indicators. I am just happy he seems okay now.
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  43. It is so reassuring and heartbreaking at the same time to read that other parents have had to witness such a scary occurrence with the loves of their lives. Our 14 month old daughter had a febrile seizure at our neighbor's home. She is our fourth child and our third child, a son, was diagnosed with a seizure disorder at 3 1/2 years old (he is now 9 years old). He was completely weaned off his medication last summer and has been doing fine since. She was pretty sleepy that morning, I had to wake her to get her dressed. In retrospect, she felt warm the day before, but, she didn't have any other symptoms other than not much of an appetite. Luckily, two of our neighbors are nurses. They said our daughter didn't seem to be herself that morning, didn't have her usual energy. She was given some motrin because she felt warm, however, she woke up from a late morning nap, standing in the crib, crying. They said she was shaking, her eyes rolling back in her head and was turning blue. They called 911 and when the ambulance arrived, they gave her oxygen. While at the E.R., she had a chest x-ray, a sterile urine sample and blood work. At the highest, her temp was 105. However, the doctor said the febrile seizure was due to how quickly her temp rose from normal to 105. She was diagnosed with a urinary tract infection. We pray to God that this was a one time occurrence and that she will not have to go through this again.
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  44. My 2.5 year old girl had her first febrile convulsion at 11 months and in that febrile episode she had three. She has gone on to have nearly thirty! She had 8 in one 24 hour period once. She was in hospital that time which was good. She has just come out of hospital again having just had another three. She had not had one since last September 2010 so we thought she may have grown out of them. They are by far the most scary thing a parent can witness. I was pregnant with our son most of last year at the time she was having so many. I developed panic attacks which I have never ever had before, largely due to the constant worry and checking and double checking if she has a fever. Mind you, we just took her temperature at the hospital and it was normal and literally two minutes later she was having a seizure with a high temp so it always just seems to catch you out. I worry that it may happen when she is on play equipment or on a high chair or somewhere where she may hurt herself. I would never dream of leaving her in the bath for a second. Hers last 3-5 minutes, sometimes her lips and mouth turn blue, sometimes they don't. Apparently if they have one before 12 months old, they are extremely likely to go on to have more. I Suppose we can all take solace that the medical profession are so relaxed about them. I hope all our children grow out of them very soon. It certainly makes you appreciate all those parents out there caring for children's' with serious disorders, some of whom seizure hourly! xx
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  45. Hello, mother of 3 here. My children are 2 months, 21 months and 6 years old. Just experienced our first febrile seizure on saturday night (2 nights ago) from our 21 month old daughter and I can honestly say that it was the most terrifying experience in my 6 years of parenting, I hope to never go through again.
    I noticed my daughter had a fever at about 11:00 AM on saturday, and as usual, I gave her tylenol and a couple luke-warm baths through out the day (I've handled many flu and cold bugs)... She refused to nap all day. So my boyfriend and I decided to lay down with her in our bed at about 5 PM and put on a movie. I dozed off and was awoken at about 6 PM to my boyfriend yelling for me to wake up cause our daughter was having a seizure. (He has first aid, but in this situation we were still both very panicked) I thought i was having a nightmare. He quickly undressed her while i ran a luke warm bath. Her seizure only lasted a minute and then she was unconsious. Her lips went blue, her body was limp her eyes rolled back and she was not breathing. I had her body in a luke warm bath to cool her and I was screaming her name for her to wake up and breath for me! My boyfriend was on the phone with 911 and we were both in complete HYSTERICS!! She slowly started to breath but her body was still limp and she just stared drowsily around the room making no noise. The ambulance seemed to take HOURS, I was yelling at the man on the phone, my boyfriend was trying for us to stay calm but it is SO HARD when you feel like your child may die in your arms!!!! My daughter and I got to the hospital about 6:30 and stayed until 11:00 pm. She had many blood tests done and was checked over by the doctor which told us that she did indeed suffer a Fibrel Seizure and that she would be fine and there was no harm done. And she was deffinetly her happy little self by the time we were leaving (like nothing happened) but the immages of her life-less body and blue lips are still fresh in my memory. I too have been losing sleep these past couple nights in fear that it may happen again. We were lucky that she was in bed with us and not alone in her crib at the time of her seizure. And to any other parents out there that have gone through this... you know exactly what it is to go through such a frightening ordeal. But its true what they say... as scary as it is and unpleasent to see... there is no harm done. I just thank God that we got through it and I hope and pray that we may not have to go through this again with any of our children.
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  46. I realize this thread was posted a couple years ago, however, reading it has made me feel better that there are others out there that know the exact terror I experienced not even two weeks ago with my 14 month old son.

    Feeling only slightly warm (otherwise our day had been completely normal) before bed, I gave my son a dose of Motrin just in case he was getting sick. Ten minutes later, he walked over and sat on my lap facing me and put his head on my chest, as he normally does. Within a minute, I felt his arms fall limp, and when I looked at his face, he just had a blank stare, as I called to my husband that he wasn't acting right and he was there in a an instant and we determined he wasn't breathing. He, a nurse and I, a paramedic began to attempt rescue breathing on him. Nothing in my life has felt like the moment when I was convinced my otherwise healthy and robust little man was dying in front of me. Anything I knew about medicine went out the window the second it became my child in front of me. My 5 year old daughter was in hysterics repeating over and over "Please don't die, please don't die" which is enough to send me into an emotional breakdown just thinking back on it. Within a minute or so, though it seemed like years, he started breathing on his own again, but was still unresponsive, but was making small sigh noises when he was breathing. 911 arrived 20 minutes after the nightmare began and when they placed the oxegen on him, he began to cry - It was the best sound in the world. The temp they got on him from the temp strip was somewhere past 102 near 104 (though he had been as high as 105.7 at the age of 6 months - my kids run REALLY high fevers when they do) So in that short period of time his fever jumped that much from barely feeling warm at all, and that was with a dose of Motrin in him. Still somewhat out of it we were transported to a local ER (we live in a small beach town) where they got him initially evaluated, but we were ultimately transferred to a superior childrens hospital about 90 miles from home. After a full workup by the amazing staff there, including Neurology consults and EEGs, we were given the diagnosis of atypical febrile seizures, since he never convulsed, twitched, or went rigid. Also, I as a toddler, beginning at his age had 5 febrile seizure events between then and the age of 3, the first presenting exactly as his did.

    We were discharged home 2 days later, and were given a prescription for Diastat in the event that it happens again, and the seizure, if there is one, lasts longer than 5 minutes. In the aftermath of this, I am still an anxious mess. I haven't slept, and I worry constantly that he feels warm, or will feel warm. We purchased multiple temporal artery thermometers so we can closely monitor his temps, but I do not want to become obsessive about it, as I'm telling my 5 year old its ok, but I am actually still freaking out internally, and honestly, I haven't even been able to process what happened yet. I dread the next time this happens as even though I may be aware of what it is, I can imagine that does not make it any easier to experience. Thanks for this blog as I was able to read about a couple similar experiences, and that there are others out there going though what we have. Please feel free to contact me as I would love to talk to those that have experienced similar events, and if they have had subsequent seizures.
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  47. My son is 6 years and 4 months and just had his first febrile seizure. Is this normal?
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  48. My twin daughter had her first febrile seizure that lasted about 5 minutes. I was alone and two blocks from home. Not knowing what was transpiring was the scariest feeling for me or any parent. Fortunately, she slowly regained her baseline and 911 arrived within minutes. After 72 hours, she is bouncing around and her normal self. What a relief, but we are mindful it may happen again. Still not sure what triggered the rapid and high fever.
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  49. My 2 in half year old son had his first febrile seizure last week and I still can't seem to catch my breath or calm my nerves. He woke up about 9am that morning and I could tell he was not feeling well he told me his throat hurt and he had a runny noise I gave him some cold medicine and tried to give him ibuprofen for his fever that was at about 101 but he threw it right back up. Then around 2 pm we were laying down on the couch watching a movie together when I looked over at him his eyes were rolled back in his head and his fists were clinched! I picked him up and his body was limp and lifeless! I was screaming his name! He then became pale blue as I reached for the phone to dial 911. They told me to lay him on his side so I did about 1 minute later he came to cough a little and feel asleep. They told me it was a febrile seizure and it was very common. They said I didn't even need to take him to the hospital! Can you imagine holding your child lifeless in your arms one minute and the next being told it was no big deal! I decided to drive him myself to the hospital just to be sure. Turns out a febrile seizure was just what it was and the cause was an ear infection.Since then I am constantly watching him like a hawk now so much so that it has consumed me! I am so terrified of it happening again! It was the worst thing I had ever had to experience and he has been through heart surgery. Wondering if we will ever catch a break..but until then I am really messed up it's like I am just waiting for the next bad thing to happen! I pray I will heal from this and be able to enjoy life with my little guy. Also, I pray for the other families on this blog! And want to thank you all for sharing it really helped knowing I am not alone in this!
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  50. I know exactly what everyone means when they say it's the most terrifying moment of their lives. My son would frequently wake up in the middle of the night either completely delirious or dazed. Every time he would be a little warm, but not high enough to be considered a fever. He had these episodes from 5 mths to 4 yrs old. Two days before his 2nd birthday he was playing with other kids at a bowling center, no prior sickness or fever at all. My husband and I had to go the store next door. I was holding him when he flung himself back. I thought he was playing at first until I tried to pull him back up. That's when I noticed the rigidness of his body and his lips were blue. I was CPR certified, but I couldn't have told you the first step when it came to my own child. The hospital was literally 2 minutes down the road so my first thought was to get my keys. I handed our son to my husband and ran back to the b. center to get them. My poor husband thought I completely panicked and ran because I didn't say anything. I came back with the keys and he was still convulsing. The store manager had EMS on the line, but I told them not to bother. It was when my husband was crying and holding him in the car begging our son not to die that I started to break down. He just kept saying over and over "Please don't do this." We made it to the hospital in 30 seconds. I had to stay out to fill out paperwork while my husband took him inside. I called my mom to tell her to hurry. She thought I was calling to tell her he died because of how upset I sounded. His fever was 102 when the ER took him back meaning it was a lot higher before the seizure brought it down. It took him a long time to become responsive too. We had no warning at all...no sickness, no fever, nothing. He was literally laughing and playing 10 minutes before the seizure. He's 5 now and thank goodness we never had to go through that again, but every twitch or strange movement he would make made my heart plummet for at least a couple years after it happened. It still replays in my mind. My husband's pleads still haunt me. Our daughter, 4 at the time, had to watch the whole thing and still talks about it. In that moment, when you think your child is going to die, it makes you wonder how a parent survives losing a child. My heart goes out to all of them.

    The thing that has had me perplexed all these years is how we had no warning. I hear about all the febrile seizures happening during a sickness with a fever. Our son had absolutely nothing before the seizure and absolutely nothing after the seizure. The dr couldn't give me a straight answer as to how a fever could spike that severely from nothing. Does anyone have any ideas or thoughts on this?
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  51. I posted in March, my daughter is now 2. She's had a total of 11 febrile seizures in the last year, it is the scariest feeling for a parent to witness their child so lifeless. She's had an EEG done and everything is normal. We now carry medicine to stop the seizure if it goes longer than 3 minutes. Most of her seizures there were no indicators that she was sick, and her fever suddenly spikes. I constantly worry everyday. She had her her last 2 about 3 weeks ago, when she had strep throat. I'm hoping she outgrows them, our doctor and neurologist was not concerned since we have family history on both my husband's side and my side of the family, and all were due to fever. But I will be following up with both doctors again. It reassuring that were not the only ones experiencing this, some people have never heard of this and simply don't understand until it happens to someone they know.
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  52. My daughter is 14 months old and just last week she had a atypical complex febrile seizure due to a high fever of 104.7. The first one was at home so i grabed her and put her on her side but after while my sister called 911 after the seizure was over which lasted about three mins she had stop breathing i had to do cpr before the ambulance had arrived then when we arrived at the childrens hospital she then went and had 4 more seizure they were about 3-5 mins except the last one which had lasted for 25 mins we were affraid we were gonna loose her i now sleep in her room so i can monitor her and even if she goes for a nap i am right in there with her since her first seizure was during a nap... i dont think i will ever forget what she looked like or that she had stoped breathing that picture will never leave my head!!
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  53. My son who just turned 5 in dec 2011 had 2 seizures witin a 24 hr time frame when he was 2 1/2 years old. It was the scariest thing ive ever been through. His 1st one he was fine all day, right before bedtime he said his head hurt but had no fever. Gave him his bath and shortly after he said it didnt hurt any more so we went to bed. Around five in the morning something woke me (keep in mind he never let out a cry or sound) I checked on him and his eyes were rolled back in his head his arms were across his chest he was shacking and had "foam looking stuff" coming out his mouth. I had no idea how long he'd been having it and i believe that scared me most and the fact of seeing him that way. Thank GOD he was laying on his side when i found him. Rush him to the ER they said he was fine test came back normal. They also said they he could have another. He did the next morning around 5 a.m. I was awake for that one b/c i was soooo scared i watched him all night. Every one tells me "don't worry" how can you not when its your child and you see them that way? Thank GOD he hasn't had another since and I pray he won't. However every time he gets a little fever or sick I'm scared to death!
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    Replies
    1. that's my biggest fear, that my daughter will have one when she's sleeping. I'm glad your son is ok. I feel the same way, I'm scared to death with any little fever or sickness
      Delete

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